Välkommen - jag är pensionerad läkare, Jag har sjukdomen MS samt under senare år också haft prostatacancer. Bloggen handlar om kost, fysisk aktivitet mm
Jag ger inga personliga hälsoråd.
I wish so badly I could read the things you write. I know you have taken interest in the treatment I had in China, but what are your thoughts on umbilical cord stem cell transplants with out any chemo-therapy? Also, what treatments do they offer in Sweden? I know that America is really lacking when it comes to successful treatments....it's so frustrating. I start TYSABRI tomorrow, what are your thoughts on it? I have to assume you have MS, is this correct?
I also have a web-site, survivingms.com I should update it..
Mikey, Yes, I have MS. It has come slowly on me. I really don't remember the first time. I think it started when I was a teenager, and now I am close to sixty-two. The name of my blog means In the Shadow of Chronic Disease-MS and other illnesses. I am an MD but I am retired.
My writing is a part of coping with the disease.I try to write about new studies as to these diseases; what new terapies are in the pipeline. I also try to write a little about healthy living. I am also interested in if diet could be a way of reducing the activity of the immune system. I found your video about the stem cell transplantation in China and the follow up extremely important.That's very brave to do this and a gift to us others trying to find our ways in the mystery fields of multiple sclerosis. I do think that MS is a disease within the immune system and that therapies ought be diected to targets in that system both drugs and stemcell transplantations. But the auto immune theory is just a theory and there are other theories also. Anyway it seems that most experts favors the autoimmune theory. I myself have no immune modulating drug now. I had serious side effects on betainterpherons and Copaxone. The last six years I have had no relapses and I feel quite well. If I have new attacks I would try to get Tysabri. There are serious side effects but there has been no brain inflammation on just Tysabri. The cases of PML were with a combination of Avonex and Tysabri. Right now there are 35000 patients on Tysabri and FDA has approved it to some forms of Chron Disease. So I think I would try it if I were a canditate. It must be the numbre one therapy right now if the others do not function. But I have hopes for Campath and Revimmune and some of the vaccines. I think USA is leading by far the research of MS and other diseases.I am right now reading a book by a Harward professor Howard L Steiner. It is called Curing MS- Hos science is solving the mysteries of Multiple Sclerosis?
When I read your blog following up the stem cell transplant I wondered you had some chemotherapy before the transplant. I suppose you hadn't, because it would have been a very risky thing. I read some where that mortality is one out of twenty in those cases. I hope I have answered some of your questions. Greetings Sune
I wish so badly I could read the things you write. I know you have taken interest in the treatment I had in China, but what are your thoughts on umbilical cord stem cell transplants with out any chemo-therapy? Also, what treatments do they offer in Sweden? I know that America is really lacking when it comes to successful treatments....it's so frustrating. I start TYSABRI tomorrow, what are your thoughts on it? I have to assume you have MS, is this correct?
SvaraRaderaI also have a web-site, survivingms.com I should update it..
Mikey,
SvaraRaderaYes, I have MS. It has come slowly on me. I really don't remember the first time. I think it started when I was a teenager, and now I am close to sixty-two.
The name of my blog means In the Shadow of Chronic Disease-MS and other illnesses.
I am an MD but I am retired.
My writing is a part of coping with the disease.I try to write about new studies as to these diseases; what new terapies are in the pipeline. I also try to write a little about healthy living. I am also interested in if diet could be a way of reducing the activity of the immune system.
I found your video about the stem cell transplantation in China and the follow up extremely important.That's very brave to do this and a gift to us others trying to find our ways in the mystery fields of multiple sclerosis.
I do think that MS is a disease within the immune system and that therapies ought be diected to targets in that system both drugs and stemcell transplantations. But the auto immune theory is just a theory and there are other theories also. Anyway it seems that most experts favors the autoimmune theory.
I myself have no immune modulating drug now. I had serious side effects
on betainterpherons and Copaxone. The last six years I have had no relapses and I feel quite well.
If I have new attacks I would try to get Tysabri. There are serious side effects but there has been no brain inflammation on just Tysabri.
The cases of PML were with a combination of Avonex and Tysabri. Right now there are 35000 patients on Tysabri and FDA has approved it to some forms of Chron Disease. So I think I would try it if I were a canditate. It must be the numbre one therapy right now if the others do not function. But I have hopes for Campath and Revimmune and some of the vaccines.
I think USA is leading by far the research of MS and other diseases.I am right now reading a book by a Harward professor Howard L Steiner. It is called Curing MS- Hos science is solving the mysteries of Multiple Sclerosis?
When I read your blog following up the stem cell transplant I wondered
you had some chemotherapy before the transplant. I suppose you hadn't, because it would have been a very risky thing. I read some where that mortality is one out of twenty in those cases.
I hope I have answered some of your questions.
Greetings
Sune